Friday 6 September 2013

Up and Downs

It's been a little while between posts but when you're riding the ups and downs of the treatment and feeling so exhausted, the thought of stringing even a sentence together seemed too much to ask.
Since the last post I've been in and out of treatment thanks to the white blood cell count constantly fluctuating, one day I was under the minimum at 0.8 and then two days later I was up to 1.8. Even thought it's important to me to keep a routine so I can manage my day, the blood tests are unpredictable and when you walk in to the hospital each day you have no idea whether you're going to staying there or being told to go home and rest up.
The intense treatment was to be administered over 20 week days, 4 weeks, but with the delays it's taken a bit longer than anticipated. Though I am getting used to it, I now manage to sleep through whilst the hospital staff administer the treatment, I can't say I won't be happy to get this stage over with. The week after week of treatment does start to feel as though it's draining you and there now feels as though there is a constant dull ache that lingers. It really takes it out of you each day after the effects of treatment kick in, at night I'm tired and the appetite I used to have just isn't there any more. After today's treatment I thankfully have two more days of intense treatment to go.
In the mornings though when I am almost back to normal I spend the time running errands, helping out a chippie friend with his paperwork and doing the house work so I am mentally occupied and don't spend the time sitting around and over-thinking the entire thing.
I did start out treatment on 44million units but with the white blood cell count constantly fluctuating and holding up the process my dosage was dropped half way through the treatment to 38million units so I could attempt to get through a full week of five consistent days without any interruptions. Week 2 has been the only full week of treatment I've had. Since then I've managed to have treatment for two or three days in a row before another test result holds me up. It's frustrating as I should've been finished with this already but there's no point letting it get to me, if I try to push my limits I could only end up in a worse condition. I had the opportunity to go to this weekend's game between the Cats and Freo but that means with a crowd that big I could face the risk of being around someone who is sick, and as my white blood cells are low that means it's even more likely I could catch something. If I did catch something I'd wind up with an infection and that would send me straight in to hospital to be on a drip, just not worth it. As shattered as I am to be missing out on seeing such a big game as well as the countless other things I've had to forgo whilst on treatment, I tell myself what it is is what it is and I have to make the best out of the situation I have at hand.
On a good note though GO CATS and have a great weekend.


3 comments:

  1. Keep going mate, keep fighting! Happy to see you blogging again.

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  2. Hi Tim, bumped into your mate Warren from Sunbury on Saturday, he said you are still well on the mend. Good to know you have great mates like him, even if he is a Pies supporter! Looking forward to your next blog update.

    Regards,
    Damien

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  3. Hi Tim..
    Hope you are doing well and you have been recovering fast :)..
    Im not sure if you will remember me ,we use to be in the same class @ Dandenong Tech, Tony from Dandedong ..:)
    All the best take care mate..

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